None listed
Conditions
Brief summary
STUDY AIM This study will evaluate the feasibility of a web-based system of patient reported outcomes (PROs) assessment to identify and address unmet needs of cancer patients. WHO IS IT FOR? Patients: You may be eligible to join this study if you are aged 18 years or more, and have been diagnosed with any type of cancer for which you are receiving care from Flinders Medical Centre. Staff: You may be eligible to join this study if you are employed by Flinders Medical Centre and provide care for patients with cancer. STUDY DETAILS: Patients and staff participants in this study will provide feedback via a survey and interview or focus group regarding their experience using a web-based portal, called iScreen, to provide PRO data. Patients will be asked to engage in qualitative interviews and complete a survey at least 3 months after their first use of the system to indicate its acceptability. Data on feasibility, cost and safety will also be collected throughout the 16 month implementation period. It is hoped that results from this study will indicate that the iScreen system is feasible, safe and acceptable. It is anticipated that further funding will be sought in order to evaluate the effectiveness of the system and to ultimately roll out the system permanently within Flinders Medical Centre and perhaps across other health institutions.
Interventions
The intervention that is being investigated for feasibility, acceptability, cost and safety is the iScreen system. This is a web-based portal that collects patient reported outcomes in order to identify and address unmet needs. Health care providers (any FMC staff that are involved in the care of cancer patients) will be trained (face-to-face and provided with a user guide) how to register patients into the iScreen system and direct them to complete the survey of patient report outcomes. The sur
The intervention that is being investigated for feasibility, acceptability, cost and safety is the iScreen system. This is a web-based portal that collects patient reported outcomes in order to identify and address unmet needs. Health care providers (any FMC staff that are involved in the care of cancer patients) will be trained (face-to-face and provided with a user guide) how to register patients into the iScreen system and direct them to complete the survey of patient report outcomes. The survey is called the Edmonton Symptom Assessment Scale, which takes approximately 10 minutes to complete. Patients will complete the questionnaire either at home (provided with a link to the portal) or with the health care provider at the time of enrolment. After the survey is completed, the health care provider and patient will receive a summary of their unmet needs (staff will receive a notification that one of their patients has an identified need). Staff will then determine appropriate management so as to resolve/reduce needs. The iScreen portal will provide suggestions to the nurse for how to manage the unmet need according to level of need identified. This will be based on evidence based algorithms developed by Cancer Care Ontario - which describe how a patient with a particular need should be managed (e.g. by referring to a specialist, by receiving educational materials or by the scheduling of a clinical appointment). Educational resources will also be accessible to the patient within the portal via links. These resources will be Australian-based and provide information about what a patient can do to meet their need. The use of the ESAS to collect Patient reported outcomes is already established as best practice. Therefore the aim of this project is to determine the acceptability and feasibility of the implementation of the iScreen system as the mechanism to implement the ESAS and to manage patient's needs. The acceptance and feasibility will be assessed by survey/focus group or interview with patients and staff, and via analysing the metrics of the iScreen system (i.e. number of patients enrolled, appropriate follow up etc).
Sponsors
Flinders Cancer Research, Flinders University
Study design
Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Treatment
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Patients: * Diagnosed with any type of cancer; • Receives care from any Flinders Medical Centre (FMC) cancer care service; and • Is able to participate in a focus group or interview or complete a questionnaire. • Able to communicate effectively for participation in data collection. Staff: • Provides clinical care to patients with any type of cancer as nurse, medical practitioner or administrative staff; and • Employed by SALHN in any FMC Cancer Service, and work in the Service regularly, e.g. locums.
Exclusion criteria
None
Outcome results
None listed