None listed
Conditions
Brief summary
The purpose of this pilot study is to determine if using the PROMs and PREMs questionnaires in real-time within an outpatient clinic for those with cancer will help to identify patient concerns for immediate discussion and management with their treating teams. Who is it for? You may be eligible for this study if you are aged 18 or over, have a diagnosis of cancer and attend a Monash Health medical oncology outpatient clinic. Study details All participants in this study will complete a variety of questionnaires about their cancer and treatment experience. There will be study questions relating to cancer symptoms, services for support and your overall quality of life. These questionnaires will be available to complete online up to 2 days prior to routine clinic visits. No additional visits are required for participation in this study. Participants will also be asked to complete a survey and/or contacted via telephone to evaluate the study at the end of the research period. It is hoped this research will improve patient oncology services and identify that these questionnaires are feasible, acceptable and useful for patients and doctors in real time.
Interventions
Participants will complete short PROMs and PREMs questionnaires on an electronic device up to 2 days prior to routine clinical consultations in an outpatient oncology clinic, either in their own home or in the clinic waiting room. These questionnaires will ask about common cancer-related symptoms, quality of life and supportive care needs. Treating clinicians will review questionnaire responses as part of their patient assessment and may use them to guide clinical care.
Participants will be sen
Participants will complete short PROMs and PREMs questionnaires on an electronic device up to 2 days prior to routine clinical consultations in an outpatient oncology clinic, either in their own home or in the clinic waiting room. These questionnaires will ask about common cancer-related symptoms, quality of life and supportive care needs. Treating clinicians will review questionnaire responses as part of their patient assessment and may use them to guide clinical care. Participants will be sent a link to an online questionnaire 2 days prior to their scheduled appointment and can complete the questionnaire on a personal electronic device. Participants who do not have access to a suitable device may complete the questionnaire over the telephone with the assistance of the research officer, or will be provided with an iPad in the clinic waiting room if they attend in person. In each case, a research officer will be available to assist participants with questionnaire completion if needed. The questionnaires will take approximately 10-15 minutes to complete and will be administered prior to each scheduled clinic appointment. The frequency of questionnaire administration will be determined by the patient's routine clinical review schedule, which will vary between participants. There will no additional visits to clinic over and above usual care for this study. The research officer will audit consultation time pre- and post-intervention to assess the impact of routine PROMS and PREMS on clinic flow. All patients attending the clinic will be offered the intervention, and a log kept of those who decline to participate including the reasons given (if any).
Sponsors
Monash Health
Study design
Allocation
Non-randomised trial
Primary purpose
Treatment
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Adults with a diagnosis of cancer attending Monash Health outpatient oncology clinics
Exclusion criteria
Patients who speak a language other than English will not be included in this pilot study, unless a caregiver or an interpreter can assist with completing the PROMs and PREMs. However, development of a clear plan for subsequent translation of the intervention to this population is recognised as a high priority.
Outcome results
None listed