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Implementation of a peer-led mental health recovery program

Better Together: Impact of a peer worker-led self-stigma program on mental health outcomes for community participants and the influence of context

Status
Terminated
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12619001312134
Enrollment
12
Registered
2019-09-26
Start date
2019-10-01
Completion date
2021-05-27
Last updated
2021-12-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Better Together will investigate the processes and outcomes of a group-based, peer-led mental health self-stigma program across multiple mental health settings. The objectives of the trial are as follows: Primary objective 1) Guided by the Consolidated Framework for Implementation Research (CFIR), identify the characteristics of the intervention, outer and inner settings, individuals and processes that influence the implementation of peer work roles using qualitative methods. Secondary objectives 2) Using qualitative methods and checklists of adherence, establish the feasibility, acceptability, fidelity and sustainability of peer worker roles in three diverse mental health settings. 3) Examine the service level outcomes of the implementation of peer workers: safety, person-centeredness and effectiveness, using qualitative methods. 4) Evaluate the effect of the peer-delivered Honest, Open, Proud Program on individuals’ self-stigma, empowerment, recovery, quality of life and satisfaction with services using both qualitative and quantitative methods. Whilst the trial is primarily exploratory, , we hypothesise that the Honest, Open, Proud Program will reduce participants' perceptions of self-stigma, and improve their perceptions of their own empowerment, recovery, quality of life and satisfaction with services. "Honest, Open, Proud" is a peer-led self-stigma reduction program, developed by renowned mental health consumer and principal investigator on the National Consortium for Stigma and Empowerment, Professor Patrick Corrigan. The program focuses on identity and disclosure as a means for reducing internalised stigma and promoting empowerment. "Honest, Open, Proud" peer facilitators guide participants through a workbook and activities that explore whether they identify as someone with a mental illness (or other similar terms), the pros and cons of disclosure and how to construct their story in a way that is safe for everyone if they do choose to disclose, particularly if they choose to be completely open such as through public speaking. The program will be delivered face-to-face, in a small group of approximately 8 participants. The delivery format is delivered in 3 x weekly 2-hour sessions, plus a 2-hour ‘booster’ session approximately 3-4 weeks later. Total participation time, including program sessions, outcome measures and the feedback session is approximately 10-12 hours across 8 weeks.

Interventions

The project will use an interventional implementation science approach: small-scale, researcher-led implementation of a program to explore outcomes and contextual influences. Program name The trial is an evaluation of the Honest, Open, Proud program. There is only one intervention arm, which comprises the Honest, Open, Proud program. The program consists of nine tasks in three lessons, plus a follow-up booster session. Timeframe The delivery format is flexible, but is usually delivered in thr

The project will use an interventional implementation science approach: small-scale, researcher-led implementation of a program to explore outcomes and contextual influences. Program name The trial is an evaluation of the Honest, Open, Proud program. There is only one intervention arm, which comprises the Honest, Open, Proud program. The program consists of nine tasks in three lessons, plus a follow-up booster session. Timeframe The delivery format is flexible, but is usually delivered in three weekly two-hour sessions, with the two-hour booster approximately 3-4 weeks later. Total participation time, including program sessions, outcome measures and the feedback session is approximately 10-12 hours across 8 weeks. Procedures The lesson content includes: Lesson 1: Considering pros and cons of disclosing: Task 1 - Do you identify yourself as a person with mental illness Task 2 - Consider the pros and cons of disclosure Lesson 2: Different ways to disclose: Task 1 - Different ways to disclose Task 2 - To whom might you disclose Task 3 - How might others respond to your disclosure Lesson 3: Telling your story: Task 1 - How to tell your story Task 2 - How did it go? Task 3 - Honest, Open, Proud through peer support Task 4 - Putting it all together Booster Follow-up 1 - The decision to disclose Follow-up 2 - Peer support programs Follow-up 3 - What has changed Materials Each session comprises information about stigma and disclosure, worksheets and activities that encourage participants to think about their own views and choices, weigh up pros and cons and to make informed choices. Mode of delivery The program will be delivered face-to-face and in small groups of approximately 8 participants. The group format allows for discussion of key points and practice sessions for disclosure and story-telling in a supportive environment, facilitated by peers with experience being "out". Who will deliver the program? The program will be delivered by peer workers trained in the Honest, Open, Proud program. Peer workers will be invited to participate in the study at a training event on the Honest, Open, Proud program, hosted by the investigator team. Training is anticipated to be a single day event, and will be completed prior to recruiting any participants into the program. These peer workers will also be invited to participate in the research, by providing their views on the implementation of the program. However, attendance at the training and delivery of the program will be independent of participation in the research (i.e. research participation is not a requirement of completing the training). It is anticipated that approximately eight peer workers will participate, including the three study investigators and the peer workers who have already expressed an interest in the study. Location Data collection is planned for three distinct settings within one Australian capital city: community-based public mental health services, a university and a recovery-focused adult mental health learning organisation (Recovery College). Peer workers have recently been introduced into the city’s public mental health system, with positions in a variety of hospital and community-based settings. Group-based programs are already undertaken by at least one peer worker and opportunities exist to extend implementation to other peer workers. The program will be delivered and evaluated during usual peer work sessions. The second planned setting is a university. The investigator team, who are all peer researchers and educators, will facilitate the Honest, Open, Proud program for staff and students of the university as part of the wellbeing program. The program will be held on campus at times agreed with participants to accommodate study and work responsibilities. The third planned setting is a mental health Recovery College. The investigators and/or peer educators within the Recovery College will facilitate the program as part of 2019 second semester course offerings. The Recovery College has a specific focus on co-production and the importance of peer-led recovery, making it an ideal comparator for the other settings, in which these concepts are being introduced retrospectively.

Sponsors

Dr Michelle Banfield
Lead SponsorIndividual

Study design

Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

There are three key groups for inclusion in the study who must be located in, and will be recruited from each selected setting we select to be a site for the study. The key sites for the study are: community-based public mental health services, a university and a recovery-focused adult mental health learning organisation (Recovery College). 1. Peer workers employed in each setting we select to be a site for the study. 2. Other staff members employed in each setting we select to be a site for the study involved in the peer worker program directly or indirectly. 3. People with self-identified lived experience of mental illness who attend at each setting we select to be a site for the study.

Exclusion criteria

There are no specific exclusion criteria. However, the program and associated research project measures are all in English and approach the issues from a Western conceptualization of stigma and mental illness. As such, this may prove challenging for people from different cultural or language backgrounds. We will not specifically exclude these people from participating, but they may require extra assistance to take part.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 28, 2026