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Feasibility of a providing an online personal dementia risk profile to improve dementia risk knowledge - Dementia risk profiling tool pilot trial

Feasibility of a providing an online personal dementia risk profile to improve dementia risk knowledge - Dementia risk profiling tool pilot trial

Status
Not yet recruiting
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12619001242112
Enrollment
30
Registered
2019-09-09
Start date
2019-10-23
Completion date
2019-12-10
Last updated
2019-10-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Our team has conducted focus groups with at-risk older adults to co-design an online dementia risk profiling tool. This pilot study aims to examine the feasibility of providing a personal dementia risk profile to help-seeking adults at-risk of developing dementia. The study will provide preliminary evidence on the impact of the personal risk profiles on improving Alzheimer’s disease risk knowledge (personal susceptibility and risk factors). The study will also explore the impact of improving dementia risk knowledge on motivation to engage in behaviour change and psychological effects.

Interventions

Participants will be required to give consent for the researchers to access your Healthy Brain Ageing clinic assessment records. From this researchers will populate a personalised dementia risk profile. Participants will receive an email with their personal dementia risk profile (pdf format) within two weeks. The personal risk profile is based on their HBA clinic assessment. A short online questionnaire about knowledge of dementia risk, motivation to engage in dementia risk reduction, and distr

Participants will be required to give consent for the researchers to access your Healthy Brain Ageing clinic assessment records. From this researchers will populate a personalised dementia risk profile. Participants will receive an email with their personal dementia risk profile (pdf format) within two weeks. The personal risk profile is based on their HBA clinic assessment. A short online questionnaire about knowledge of dementia risk, motivation to engage in dementia risk reduction, and distress will be asked pre and post being provided the dementia risk profile. Participants will also be given the option to participate in a telephone interview to debrief and provide us with additional feedback, which will be audio recorded.

Sponsors

The University of Sydney
Lead SponsorUniversity

Study design

Allocation
Non-randomised trial
Primary purpose
Educational / counselling / training

Eligibility

Sex/Gender
All
Age
50 Years to 80 Years
Healthy volunteers
No

Inclusion criteria

Patients at the Healthy Brain Aging (HBA) clinic with mild cognitive impairment (MCI) or subjective cognitive decline (SCD) who have received neuropsychological test feedback.

Exclusion criteria

- Those diagnosed at the HBA clinic with dementia or pre-existing severe cognitive impairment due to neurological conditions, psychosis, intellectual disability, substance misuse, stroke, or acquired brain injury. - To minimise burden on HBA clinic patients, those who have already been approached to participate in 3 other studies and/or are participating in an intervention or longitudinal study as part of their involvement with the HBA clinic. - Does not have reliable access to the Internet.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026