None listed
Conditions
Brief summary
Registry of patients with biopsy-proven renal disorders enabled by a collaboration of the State Wide Clinical Renal Network , Renal Physicians from Hospital and Health Services across Pathology Queensland and CKD.QLD,The University of Queensland and governed by a steering committee. The principal aim of the Registry is to improve patient care and outcomes. The Registry will do this by profiling renal biopsy proven disorders in Queensland which will facilitate early recognition, benchmark management to best practice, and provide a platform to validate new care strategies. Specific objectives include: 1.Development of a prospective collection of clinical, laboratory, pathology, treatment and outcome data of patients with biopsy proven medical renal disease 2.Consolidation of data into a collated data set [Registry] 3.Evaluation of patient data to identify and facilitate improved clinical care and management 4.Support clinical research 5.Identification and development of health policies targeting patients with biopsy proven renal disorders 6.Develop links and collaborations with other registries nationally and internationally
Interventions
Observational Study
Data of the patients who underwent Kidney biopsy are collected in this registry including demographics, investigations including kidney biopsy findings, treatment administered. Participants consent is waived for retrospective collection of data who underwent biopsy till 2018. New Participants ( 2019 onwards) who underwent kidney biopsy consent will be obtained to access the records . All the participants data will be collected - whenever there is occasion of service till the
Observational Study Data of the patients who underwent Kidney biopsy are collected in this registry including demographics, investigations including kidney biopsy findings, treatment administered. Participants consent is waived for retrospective collection of data who underwent biopsy till 2018. New Participants ( 2019 onwards) who underwent kidney biopsy consent will be obtained to access the records . All the participants data will be collected - whenever there is occasion of service till they are followed up .
Sponsors
Associate Professor Sree Krishna Venuthurupalli on behalf of Steering Committee , Queensland Renal Biopsy Registry
Eligibility
Sex/Gender
All
Healthy volunteers
No
Inclusion criteria
All children or adults with renal biopsy proven medical renal disease.
Exclusion criteria
Not willing to participate in the registry Inability to obtain informed consent from the parent or guardian Inability to understand English in the absence of an interpreter
Outcome results
None listed