Does timely care matter to lung cancer patients? A sub-study of the Continuous Improvement in Care – Cancer (CIC-Cancer) Project.

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ANZCTR

Registry ID

ACTRN12619000805178

Enrollment

Registered

2019-06-03

Start date

2019-10-11

Completion date

2021-06-15

Last updated

2020-01-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Lung cancer is the leading cause of cancer-related mortality and morbidity in Australia, with more than 8000 Australians predicted to die in 2018 alone. Due to the poor outcomes experiences by many lung cancer patients, clinicians attempt to provide rapid review, diagnosis and treatment and adhere to the timeframes suggested in the Cancer Council’s Optimal Care Pathway. Whilst scientific end points, such as survival are important, patient reported outcomes, such as quality of life and satisfaction with care are also vital. This move towards more patient-centric care is being championed in Western Australia by the Continuous Improvement in Care – Cancer (CIC-Cancer) Project. Are you eligible to take part in this study? This study aims to establish if providing guideline-driven care, in terms of timeliness, improves patient satisfaction amongst people with lung cancer. You may be eligible to take part if you have primary lung cancer and are undergoing treatment and have consented to have your clinical information collected by the CIC-Cancer database. What does the study involve? Patients will be asked to complete an 18 question survey at the time that they start treatment for lung cancer. The survey will assess different areas of patient satisfaction with care, including access to appointments and communication with their doctor. Patients will not be obliged to any other follow up. How will involvement in this study help patients with lung cancer? This study will help us to validate the Cancer Council Optimal Care Pathway and ensure that striving to achieve rapid review and treatment really is making patients more satisfied with their care.

Interventions

A cohort of lung cancer patients will be observed from initial abnormal CT scan all the way through until commencing treatment. Various time intervals, including referral - review and referral - treatment will be measured for each patient. At the time of treatment commencement, a patient satisfaction survey will be administered. Patients will only be followed up until the time of their first treatment.

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

1) Diagnosis of primary lung cancer 2) Receiving active antineoplastic therapy 3) Reviewed by the Respiratory Service at participating hospitals during the study period

Exclusion criteria

1) Patients unable to answer survey questions 2) Patients with mesothelioma.

Outcome results