None listed
Conditions
Brief summary
This research is motivated by the notion that we feel alive and valued when we can make and share things. It looks at the benefits of a purposefully designed makerspace and arts in health intervention for long-term patients in assisting them to deal with the change and challenges they face. It examines the experience of a group of adult hemodialysis patients and their interaction with a mobile makerspace, created for this project, the ‘Makeway Lab’. The project will consider the participatory act of ‘making’ and the impact of the Makeway Lab in a hospital setting and deliver a series of digital maker activities with a group of people on the Sunshine Coast, Queensland. For the participants the project provides them interesting and engaging activities, to stimulate them socially, cognitively and physically. For the hospital the project accounts for the social and mental health of the participants and provide an innovative arts in health intervention. At a time of growing international acceptance of the notion that participation in the creative arts can be beneficial for wellbeing and health (Clift, 2012), this study will provide a unique hospital inquiry and patient testimonies for the value of a makerspace for human health.
Interventions
Makeway Lab, a mobile makerspace for hospital The hospital inquiry will involve a series of recruitment, administration, maker workshops, and data collection procedures. The Makeway Lab is a mobile makerspace designed for use by patients in hospitals. It carries digital design and fabrication technology such as 3D printer, scanners, cutters, for the purpose of building creative or functional objects. Inquiry Procedure With ethics approval and final arrangements with the Sunshine Cost University Hospital (SCUH) and Nambour General Hospital (NGH) the recruitment process will commence. The research will involve a group of 10-15 adult (aged 18 years and older) Sunshine Coast residents who are receiving dialysis treatment. To recruit participants a flyer will be distributed to patients across the renal dialysis units SCUH and NGH. The flyer will be posted on the wall in the Renal Ward and other (physical and online locations) recommended by Queensland Health (QH) employees. The flyer will be distributed by the Renal Team members or other associated QH employees. To assist the recruitment process QH employees may introduce the PI to the potential participant to address any questions. If there are more than 15 people expressed interest, those who are not selected will be offered a Makeway Lab demonstration/workshop opportunity.. This material includes the, recruitment flyer, project information, Participant Information. Participant recruitment will be managed in consultation with the Renal Teams. Participant Information Session - The researcher will provide two demonstrations of the Makeway Lab and introduce the research to potential participants and rental staff. The session will provide detail the maker activities and things that can be made; detail the information to be collected and how the information will be used; and discuss the recruitment and consent process. This session will be located at the hospitals where the participants are being treated. This session will take 30 minutes to 1 hour. Consent Process - Each participant will complete the consent form. WHO-5 Questionnaire 1 - Each participant will complete the WHO-5 questionnaire. This can be completed at the participant’s hospital or home. The questionnaire will take 5 to 10 minutes Semi-Structured Interview 1 - An audio recorded interview will be undertaken at the participant’s hospital (or other agreed location). The interviews will each take 30 minutes to 1 hour. Maker Workshops - will be delivered at the participant’s hospital to coincide with their scheduled visits. It is anticipated that each participant will undertake at least 6 and up to 8 maker workshops. The duration of each workshop session is 2 - 3hrs dependent on the energy of the participant/s. The researcher will instruct and guide each participant through a series of activities, including: an introductory session with the iPad/Apple Pen/Apps; a play/practice session with the tools and equipment; design and fabricate sessions to create small to more complex objects using the 3D Printer; The researcher will document/photograph the results of the activities. Group connection - direct and online connection with the other participants will be encouraged. A closed FaceBook group will be created for the participants to share and discuss the maker activities and experiences. The closed Facebook group will not be moderated, it is used for the online communication and connection of the participants; facilitator/ researcher (principal investigator). WHO-5 Questionnaire 2 - Each participant will complete the WHO-5 questionnaire. Semi-Structured Interview 2 - An audio recorded interview Display - Potentially a display of participant’s projects will be installed at the end of the inquiry. The display will be located at the hospital and / or at an agreed location. Group Evaluation Session - Discuss the outcomes, the successes and problems; Where to next with the activity for the individual participant and group. This session will take 30 minutes to 1 hour. Closing / Celebration Event - Potentially, a display of participant’s projects will be installed and presented to the hospital community and participant’s family and friends. The display will be located at the hospital and / or at an agreed location.
Sponsors
Study design
Eligibility
Inclusion criteria
The participants must: - be aged 18 years or older. - be a renal dialysis patients. - have a good understanding of computer technology. - be willing to participate in the activity for a 6-8 week period. - be prepared to connect with other participants.
Exclusion criteria
Participants would not be selected if they were not available for the full period; or who have little experience with computer technology.