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A Cognitive Behavioural intervention for parents of children with Arthritis

Impact of a Cognitive Behavioural intervention for parents of children with Juvenile idiopathic Arthritis on parental behaviour and functioning: a pilot study

Status
Not yet recruiting
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12619000161123
Enrollment
34
Registered
2019-02-04
Start date
2019-03-01
Completion date
2019-04-01
Last updated
2019-07-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The study will involve providing a psychological intervention to parents whose children suffer from arthritis. The intervention will focus on changing the parent’s thinking and behaviours around their child’s experience of pain in arthritis, and helping parents develop skills to better assist their child in learning to cope with pain. This intervention will consist of four, two-hour sessions at Murdoch University and will be delivered in groups of 6-8 parents. Only parents will be required to attend these sessions as this intervention will be parent-focused, helping to educate parents about chronic pain and providing them with skills to better equip them to helping their child manage their pain.We aim to investigate whether this intervention can to lead to: a. reduction in unhelpful thoughts that parents may have about the impact of pain on their child. b. increase helpful parenting strategies; c. reduce parent’s fear of pain and, d. improve parent self-care. This will be assessed by administering questionnaires to the parents before and after the completion of the intervention. We also want to investigate whether any improvements amongst parents will lead to improvements in children’s functioning and mental health. Improvements amongst children will be assessed by the parents, who will be administered questionnaires before and after the completion of the intervention. Children will not be required to complete any questionnaires.

Interventions

Parents will be randomly allocated into groups of 6-8 and invited to attend four, two-hour sessions of group Cognitive Behavioural Therapy (CBT) at the Murdoch University Psychology Clinic. The sessions will be conducted weekly and will be delivered by the student researcher, who is currently undertaking the second year of a Masters of Clinical Psychology. Training and supervision will be available from Dr Vance Locke, a Clinical Psychologist with significant experience in working with individua

Parents will be randomly allocated into groups of 6-8 and invited to attend four, two-hour sessions of group Cognitive Behavioural Therapy (CBT) at the Murdoch University Psychology Clinic. The sessions will be conducted weekly and will be delivered by the student researcher, who is currently undertaking the second year of a Masters of Clinical Psychology. Training and supervision will be available from Dr Vance Locke, a Clinical Psychologist with significant experience in working with individuals with chronic pain. Structure of the intervention will be as followed; Session 1: Prior to commencement of the intervention, the aims and processes of the research will be discussed, allowing time for participants to ask questions if needed. Following this, participants will be asked to sign consent forms. Following this, pre-intervention data will be collected as participants will be required to fill out pre-intervention self-report measures. Participant adherence will be monitored by logging down their attendance each session. Session structure · Parents will be provided psychoeducation on the difference between acuteand chronic pain and will beintroduced to the chronic pain cycle. · Parents will be provided with psychoeducation around pain and will be assisted in understanding factors that have an influence on pain through a bio-psycho-social perspective. Factors that will be discussed: · Physiological response to pain and threat · Pain related thoughts/beliefs- catastrophizing thoughts · Fear of pain and the fear-avoidance model of pain. · Unhelpful coping · Parents will be provided psychoeducation on the impact of stress on chronic pain Session 2: · Parents will be provided psychoeducation on pharmacological treatments of chronic pain · Parents will be encouraged to understand the importance of managing chronic pain through a bio-psychosocial perspective. · Parents will be educated about the biopsychosocial approach to pain management and learn strategies of how they can support their children using this approach. Strategies that will be discussed: · Challenging unhelpful thoughts/beliefs about pain (catastrophizing thoughts/fear of pain) · Helpful coping – Relaxation, PACING. Session 3: · Pain will be introduced in a social context, looking at how other people may influence how their child perceives their pain. · Parents will be educated about the interaction between parent-child that may impact on the child’s pain. The following will be discussed; ·Parental response to child pain. ·Positive/negative reinforcement of pain ·Protective behaviours ·Child/adolescent autonomy. · Parents will be provided an opportunity to learn and develop skills that will foster positive interactions with their children, that will reduce the likelihood of increasing children’s pain and disability. Session 4: · Parents will be provided education on the role of pain in the family – how it may place restrictions to the parent’s own life, marital and financial difficulties, and mood. · Parents will be educated about the interactions between parents- parental distress, mental health and support. · Parents will be introduced to the concept of helping their child by helping themselves-looking at self-care and social support. 1. Two days after intervention completion, participants will be emailed post-intervention questionnaires and will be asked to complete the questionnaires and mail/email them back to the researchers within a 7 day period.

Sponsors

Murdoch University
Lead SponsorUniversity

Study design

Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Treatment
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

Parent of a child with juvenile Idiopathic arthritis. The parent should be a caregiver of the child and currently reside with the child.

Exclusion criteria

Parent cannot speak or read in English.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026