None listed
Conditions
Brief summary
Physical activity participation in persons with a disability; specifically children with cerebral palsy in this research, is extremely important as we know such children currently do not meet minimum physical activity guidelines. Even the most able children with cerebral palsy are sedentary and they have greater health risk factors into adulthood than their typically developing peers. The development and attainment of high level mobility skills such as running, agility exercises and jumping, may particularly support children with cerebral palsies participation in physical activities in areas the of attendance and involvement, within the community. The lack of evidence for physical activity interventions in cerebral palsy and poor translation to increasing participation, reinforces the need to change our interventions from an impairment-based focus to activity and participation focus. The complexity of participation and the need for new knowledge particularly in the area of involvement is essential to promote physical activity for life. Long term focus needs to shift to sustained participation, for it can be considered the ultimate health and educational outcome and the desired goal of rehabilitation (Whiteneck and Diejkers, 2009). The current research will focus on improving the activities of running and high level mobility skills to enhance potential participation in the form of attendance and involvement, in any physical activity of each child's choice. The study provide a 3 month intervention of high level mobility skills training for 8 ambulant children with cerebral palsy following a SSRD design (single subject research design). Each child will set physical and participation goals. Children will be followed up for 9 months post intervention to investigate if participation has been sustained. Research questions 1. Does a community based high level mobility programme (HLMP) improve the physical activity performance of children with cerebral palsy? 2. Does participation attendance and involvement in sport or other physical activity change following the HLMP? 3. To what extent do participants achieve sustained physical activity participation following completion of a community-based HLMP?
Interventions
This research is concerned with the ability of ambulant children with cerebral palsy to take part, and sustain their participation, in community-based physical activities. The included children with cerebral palsy will be able to walk with and without walking aids and will participate in a programme designed to improve their running and high-level mobility skills such as jumping, hopping and skipping. The programme will be run as a community group based programme at a local park and school. Each child's goals and programme will be individualised. The group will be run by an experienced paediatric physiotherapist (28 years of physiotherapy) and a trainer who is skilled in training children. The programme will focus on participation attendance and involvement in a high-level mobility programme (HLMP) for three months, and the extent to which participation in community-based physical activities of their choice for a further nine months is sustained, will be assessed. Community activities will include those done at home, school or wider community, but not therapy-based activities. The children will keep a diary of their physical activities. There will be physical performance and participation outcome measures tested at baseline, before and after the high level mobility programme intervention and after 6 months of follow up for physical performance and 9 months for participation. The research will be run as a SSRD - single subject research design with multiple baselines. Each child will attend 2 sessions per week of the programme during the intervention phase for 3 months. Each session will last 1 hour and be targeted at each child's ability and self selected goals. The programme will use rebounders, agility ladders, small hurdles, cones and balls. It is anticipated that such a programme may support the children’s medium to long term health and well being. The aim is to recruit eight children with cerebral palsy. The children will be placed into two groups based on cerebral palsy mobility classification - gross motor functional classification system (GMFCS). This will form the treatment fidelity. One group of 4 children will be classified GMFCS I - able to mobilise independently over all surfaces but lack high level motor skills of their typically developing peers and the second group GMFCS II - walks without assistive devise but has limitations in walking outdoors, in the community and requires a rail for stairs. Each child will then follow their own course through the SSRD based on their individualised goals.
Sponsors
Study design
Eligibility
Inclusion criteria
Children with cerebral palsy aged 7-18 years Ambulant - can walk 10 m independently and climb 6 stairs with or without a rail Can follow instructions and set goals Can commit to programme time frame - up to 1 year from baseline to end of follow up phase Medical clearance from GP or physiotherapist
Exclusion criteria
Inability to follow instructions Behaviour that is not conducive to group setting and setting/working towards goals Unable to commit to time frame Any medical condition in the past 6 months that would prevent/contradict exercising Any multilevel orthopaedic surgery in the past 1 year