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BRAIN: Development of a detailed database for collection of clinical data in patients with brain cancer

BRAIN: Development of a detailed database for collection of clinical data in patients with brain cancer.

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ANZCTR
Registry ID
ACTRN12618001959268
Acronym
BRAIN (Brain Registry Australia: Innovation and traNslation)
Enrollment
8557
Registered
2018-12-04
Start date
2021-02-18
Completion date
2026-02-18
Last updated
2024-04-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The aim of this study is to establish a comprehensive clinical registry for patients with brain tumours in Australia. Who is it for? You may be eligible to join this study if you are aged 18 years or above and have been diagnosed with a brain tumour. Study details Participants in this study will continue to receive routine clinical care, which will not be impacted by involvement in this study. All enrolled patients will have clinical data collected for up to 5 years. Data captured will include presentation and the disease course of brain tumours, surgical interventions, prescription of system therapies, and information regarding multi-disciplinary management and outcomes of this disease in the routine clinical practice setting. This registry will help to describe the current practice patterns and identify any deficiencies or abnormalities. By doing so, we can ensure that Australian brain tumour patients receive the best care possible.

Interventions

The follow-up period is 5 years. No additional tests are required, all data will be collected from the medical record of patients with histologically confirmed brain tumours. Data captured will include presentation and disease characteristics, surgical interventions, prescription of system therapies, and information regarding multi-disciplinary management and outcomes of this disease in the routine clinical practice setting.

Sponsors

The Walter and Eliza Hall Institute of Medical Research
Lead SponsorOther Collaborative groups

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

Histologically confirmed brain tumours including but not limited to glioma, meningioma, brain metastases and rare tumours including medulloblastoma and ependymoma. Adults aged 18 years and above.

Exclusion criteria

Patients with cerebral lymphoma will be excluded.

Outcome results

None listed

Source: ANZCTR · Data processed: Jul 25, 2026