None listed
Conditions
Brief summary
The VERILY project aims to trial and evaluate a set of strategies for increasing online support for rural carers of people living with dementia. Participants will include carers, volunteers, and staff, who will be asked to use a website or mobile app and participate in videoconference support groups and then provide feedback about their experiences by completing surveys, a focus group, or an interview, and by responding to follow-up telephone calls from researchers.
Interventions
There are 3 components of the intervention which will be all made available to all participants when they are assigned to the intervention group: 1. A “technology learning hub” in each rural community that is staffed by volunteers who have been trained to help carers to learn how to use online technology. The hub is available during business hours for access at participants' discretion. 2. A website and mobile application (app) that provide information about services for people with dementia and that also helps connect carers and service providers with each other. Both the website and app have been specifically designed for the study. However, some of the content has been collated from readily available literature and other information sources which we have cited and acknowledged accordingly. The website and app will be available ad libitum. 3. Carer peer support groups that meet by video-conference once every eight weeks. The groups are not facilitated but will be organised by the study research officer who will also monitor and record session attendance. Owing to the open cohort stepped wedge design, the intervention duration will be dependent on the time each cluster commences the intervention. Hence the intervention will be delivered over a minimum of 8 weeks and a maximum of 32 weeks. The research officers will collect data on the usage and access of each of the intervention strategies. We will also use website/app analytics from logins to monitor adherence and access google data analytics on website/app use.
Sponsors
Study design
Eligibility
Inclusion criteria
Carers: - caring for a person with dementia or cognitive impairment - live in the catchment area - willingness to try the app on a smartphone or tablet with internet access or to use the website on a computer with internet access AND/OR willingness to participate in peer support groups via video-conference on a electronic communication device with internet access and video-conferencing functionality Community volunteers: - live in the catchment area - willingness to undertake volunteer training - willingness to assist people to learn to use online/digital technologies Service provider staff: - provide dementia service or service for older adults in the catchment area - willingness to try the app on a smartphone or tablet with internet access or to use the website on a computer with internet access
Exclusion criteria
People who do not have functional English language as the VERILY app and website are developed in English.