None listed
Conditions
Brief summary
The aim of this study is to identify and categorize barriers and facilitators to the use of guidelines in the management of bronchiectasis and to clarify current bronchiectasis care. Objectives: 1.To examine sample populations of health professionals and patients working or living with bronchiectasis to determine their attitudes to bronchiectasis management and the use of guidelines. 2.To examine opinions to bronchiectasis guideline specific areas of patient management including action plan/ emergency pack use, vaccination, sputum clearance, use of antibiotics, impact of co-morbid disease, clinical assessment and documentation of review. 3.To explore patterns and common themes in attitudes to bronchiectasis management and use of guidelines Study design: Questionnaires and semi moderated guided interviews will be conducted to obtain quantitative, semi quantitative, and qualitative data from participants. Participants will be health professionals (Respiratory physicians, respiratory nurses and respiratory physiotherapists) and bronchiectasis patients. It is expected recruitment will be between 12-18 people from each of these 2 groups. If data saturation is not reached more participants will be recruited. Study procedure At interview participants will bring consent form and sign, answer the questionnaire and then take part in the semi structured interview. Bronchiectasis patients will complete an additional Quality of life assessment using the quality of life bronchiectasis questionnaire. A eFACED severity score will also be calculated for patients to allow grouping of patients responses with like disease severity/ impact. Data Analysis Transcribed interviews will be coded by 2 researchers using deductive thematic analysis to categorise the responses into the 18 Domains of the Theoretical Domains Framework. Date will be analyses using IBM Statistical Package for Social Science (SPSS) Statistics Version 24.0. for quantitative data and coded responses will be entered and analysed in NViVo software version 11.0. Data collected will be safely and securely managed. Audio recordings will be kept for 15 yrs, data will be de-identified through use of a study code. All data will be stored securely with password protection on secure network or locked filling cabinet accessible by trial researchers only.
Interventions
Questionnaires and semi moderated guided interviews will be conducted to obtain quantitative, semi quantitative, and qualitative data from participants ( Health professionals and patients with bronchiectasis) about their attitudes and experiences with bronchiectasis management and the use of guidelines.
The questionnaire will collect demographic information and responses to statements on 7 point Likert scales. After questionnaires are completed at the same visit qualitative data will be obtaine
Questionnaires and semi moderated guided interviews will be conducted to obtain quantitative, semi quantitative, and qualitative data from participants ( Health professionals and patients with bronchiectasis) about their attitudes and experiences with bronchiectasis management and the use of guidelines. The questionnaire will collect demographic information and responses to statements on 7 point Likert scales. After questionnaires are completed at the same visit qualitative data will be obtained through one-on-one interviews using a semi-structured moderated guide. It is estimated that this will take 40 mins for health professions and 1-1.5 hours for patients. Bronchiectasis patients will also complete a quality of life questionnaire and a eFACED severity score will be calculated to determine impact of disease. Interviews will be audio recorded and these will be transcribed by the researcher soon after completion of interview. The interview will be moderated or guided by the principle investigator using a developed series of interview questions with some additional prompts guided by participant responses.
Sponsors
Kathryn Lawton
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Health Professionals: Respiratory medical physicians, respiratory nurses and respiratory physiotherapists working with bronchiectasis patients in an outpatient setting for greater than 12 months in the last 5 years. Bronchiectasis Patients: Clinical diagnosis of bronchiectasis and moderate - severe bronchiectasis as determined by eFACED severity score
Exclusion criteria
Health professionals: unwilling to participate Patients: not being followed up in outpatient respiratory clinic for management of bronchiectasis..Non-English speaking. Patients with mild bronchiectasis
Outcome results
None listed