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Agents of Change': Improving post diagnosis care for people with dementia and their carers through the establishment of a National Quality Collaborative to implement guideline recommendations

Agents of Change': Improving post diagnosis care for people with dementia and their carers through the establishment of a National Quality Collaborative to implement guideline recommendations

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12618000268246
Acronym
AOC
Enrollment
36
Registered
2018-02-21
Start date
2017-12-13
Completion date
2018-06-04
Last updated
2019-02-04

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

‘Agents of Change’ is a new collaborative research project funded by the NHMRC Boosting Dementia Research Grants and NHMRC Cognitive Decline Partnership Centre. The project aims to improve the implementation of three key recommendations from the Clinical Practice Guidelines for Dementia in Australia: 1. ‘People living in the community should be offered occupational therapy (reflecting evidence based programs)’ 2. ‘People with dementia should be strongly encouraged to exercise’ 3. ‘Carers and family should have access to programs to support and optimise their ability to provide care for the person with dementia’ This will be achieved by establishing a national quality collaborative in which health professionals across Australia are trained and supported to develop and enact an implementation plan addressing one of the recommendations. Health professionals (e.g. general practitioners, nurses, social workers, occupational therapists, physiotherapists, psychologists) who regularly provide services to people with dementia, and who have some influence in their workplace to affect change will act as implementation clinicians. Implementation clinicians will be trained and supported to develop and then enact an implementation plan tailored to their recommendation of interest. They will participate in an online training course about quality improvement and translating research evidence into practice. In addition to the online training and tools, Implementation clinicians will be supported by a team of clinical, consumer and quality improvement experts to develop their unique implementation plan. They will have regular opportunities to have online communication with their collaborative. The primary outcome of this project is to measure the number of people living with dementia receiving the recommended level of care (consistent with the implementation plan). The feasibility of establishing national quality collaborative will also be explored. Interest and participation in the program will be assessed and feedback about the success of plans and barriers to implementation from clinicians and the people with dementia they are supporting will be gathered.

Interventions

Online delivery of a training course for health professionals. Health professionals working in dementia care will act as implementation clinicians in the AOC project. They will be supported and trained to develop and then enact an implementation plan to improve the implementation of three key recommendations from the Clinical Practice Guidelines for Dementia in Australia: • Occupational therapy - people with dementia living in the community should be offered occupational therapy (reflecting ev

Online delivery of a training course for health professionals. Health professionals working in dementia care will act as implementation clinicians in the AOC project. They will be supported and trained to develop and then enact an implementation plan to improve the implementation of three key recommendations from the Clinical Practice Guidelines for Dementia in Australia: • Occupational therapy - people with dementia living in the community should be offered occupational therapy (reflecting evidence based programs) • Exercise - people with dementia should strongly be encouraged to exercise • Carers - carers and family of people with dementia should be offered respite and have access to programs to support and optimise their ability to provide care for the person with dementia Implementation clinicians will enact their plan within their workplace within the resources available to them, and have ongoing meetings and support with their collaborative and experts. METHOD: Implementation clinicians will be recruited via advertising. Suitable clinicians will complete online training program with a time commitment of approximately 2 hours a week for 6 weeks. The research team will develop the online learning program with the help of consumer advisers and clinical experts in the field. Clinical experts and the research team include occupational therapists, exercise physiologist, psychologist, international business manager, and academics, including research fellows and senior research fellows with an extensive experience in aged care and dementia research. Consumer advisers are person with dementia and the carer who both have been previously involved in research and advocacy in dementia. Implementation clinicians will participate in this online learning program where they will be trained in practical implementation to gradually develop a site specific implementation plan. They will have a support from the research team and an implementation expert. The implementation clinicians will develop their own implementation plans iteratively and interactively during the online training and will be enacted within their own site using 'plan-do-study-act' methodology. The aim of the intervention is to support the implementation clinicians to become 'agents of change' and enable people living with dementia and their formal carers to be routinely provided with best practice care. The outcomes measured are: • Primary outcome: the number of people living with dementia receiving care which meets the following criteria: - occupational therapy - exercise and - informal carers as described by treating clinician. • Secondary outcomes: evaluation outcomes including acceptability, feasibility, adherence to the guideline recommendations, consumer reported outcomes and experience and skills and knowledge acquired by clinicians in quality improvement. MATERIALS: Implementation clinicians will develop their own theory-informed implementation plan using plan-do-study-act (PDSA) cycles. They will learn about practical application of Organisational Readiness and COM-B and draw on these models as they form their implementation plan tailored to their recommendation of interest within their own sites. In addition to online training and tools they will have regular online communication and teleconferences with their peers to support and learn from each other. It is anticipated that implementation clinicians will have teleconferences with their peers once per month, between 30 and 60 minutes for the duration of the project (18 months). They will also have the opportunity to have a written communication with their peers on MOOC (online learning platform) that they will organise at their own discretion. In addition researchers will also create a networking group on Yammer or similar social networking service to enable clinicians to have ongoing communications with each other (at their own discretion) for the entire duration of the project (9 months prior to- and 9 months post the intervention). This study incorporates 18 months of data collection, 9 months pre intervention and 9 months post intervention. INTERVENTIONIST: The interventionist is a registered health professional (as described above) who will receive the training and get support to develop its own theory informed implementation plan aiming to improve access to physical activity, occupational therapy, and respite and carer support for people with dementia and their cares.

Sponsors

Flinders University
Lead SponsorUniversity

Study design

Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Treatment

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

Health professionals across Australia ( e.g. general practitioners, nurses, social workers, occupational therapists, physiotherapists, psychologists) who regularly provide services to people with dementia, and who have some influence in their workplace to affect change. People with dementia living in the community.

Exclusion criteria

People with dementia living in residential aged care facilities will be excluded. Failure to meet the above criteria.

Outcome results

None listed

Source: ANZCTR · Data processed: Mar 5, 2026