None listed
Conditions
Brief summary
Parkinson’s disease (PD) is a chronic, progressive, incurable, and disabling neurological condition. In addition to the many physical symptoms at least 75% of people with PD experience impaired speech production and various mental health issues, such as depression and anxiety. This mixed-methods study aims to explore the experience of group singing for people with PD and examine the effects of long-term participation on communication and health outcomes. We will assess speech and voice function, speech-related quality of life, and communication participation, as well as wellbeing outcomes such as depression, anxiety and fatigue for both participants with PD and their caregivers.
Interventions
Intervention = therapeutic singing groups (these groups include 30 mins vocal/speech exercises and warmup, 60 mins singing songs, 30 minutes socialisation over tea/coffee) Arm 1 - weekly 120 minute singing groups for 12 months - delivered by allied health professional (music therapist, speech pathologist, allied health assistant) Arm 2 - monthly 120 minute singing groups for 12 months - delivered by community musician volunteers As this is not a randomised trial, participants who agree to participate can elect to join a weekly or monthly singing group or be a control participant. Mode of delivery - face to face group sessions Location where the intervention occurs - community venues Intervention adherence will be measured using attendance records.
Sponsors
Study design
Eligibility
Inclusion criteria
1. Medical diagnosis of Idiopathic Parkinson’s disease 2. Nil history of other neurological, head and neck, or respiratory disorders 3. Ability to provide informed consent to participation in study 4. Some degree of communication change reported by person with Parkinson’s, caregiver or health professional 5. Mini Mental Score > 24 or with mandatory carer support if lower Mini Mental score 6. Any changes in Parkinson’s medication regime or other medication/medical intervention to be documented 7. Any Speech Pathology or Music Therapy rehabilitation intervention during course of the study to be carefully documented 8. Any diagnosis and/or treatment of anxiety or depression to be documented Carers: 9. Mini Mental Score > 24 10. Any diagnosis and/or treatment of anxiety or depression to be documented
Exclusion criteria
1. Severe cognitive impairment or memory problems 2. Severe language problems or hearing impairment