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ParkinSong singing groups for people with Parkinson's disease and their caregivers

Staying in Tune with Parkinson’s Communication: Investigating the effects of long-term participation in ParkinSong singing groups for people with Parkinson's disease and their caregivers

Status
Completed
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12617000528358
Enrollment
121
Registered
2017-04-11
Start date
2016-01-05
Completion date
2016-11-09
Last updated
2018-06-11

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Parkinson’s disease (PD) is a chronic, progressive, incurable, and disabling neurological condition. In addition to the many physical symptoms at least 75% of people with PD experience impaired speech production and various mental health issues, such as depression and anxiety. This mixed-methods study aims to explore the experience of group singing for people with PD and examine the effects of long-term participation on communication and health outcomes. We will assess speech and voice function, speech-related quality of life, and communication participation, as well as wellbeing outcomes such as depression, anxiety and fatigue for both participants with PD and their caregivers.

Interventions

Intervention = therapeutic singing groups (these groups include 30 mins vocal/speech exercises and warmup, 60 mins singing songs, 30 minutes socialisation over tea/coffee) Arm 1 - weekly 120 minute singing groups for 12 months - delivered by allied health professional (music therapist, speech pathologist, allied health assistant) Arm 2 - monthly 120 minute singing groups for 12 months - delivered by community musician volunteers As this is not a randomised trial, participants who agree to p

Intervention = therapeutic singing groups (these groups include 30 mins vocal/speech exercises and warmup, 60 mins singing songs, 30 minutes socialisation over tea/coffee) Arm 1 - weekly 120 minute singing groups for 12 months - delivered by allied health professional (music therapist, speech pathologist, allied health assistant) Arm 2 - monthly 120 minute singing groups for 12 months - delivered by community musician volunteers As this is not a randomised trial, participants who agree to participate can elect to join a weekly or monthly singing group or be a control participant. Mode of delivery - face to face group sessions Location where the intervention occurs - community venues Intervention adherence will be measured using attendance records.

Sponsors

Dr Jeanette Tamplin
Lead SponsorIndividual

Study design

Allocation
Non-randomised trial
Intervention model
Parallel
Primary purpose
Treatment
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to 80 Years
Healthy volunteers
No

Inclusion criteria

1. Medical diagnosis of Idiopathic Parkinson’s disease 2. Nil history of other neurological, head and neck, or respiratory disorders 3. Ability to provide informed consent to participation in study 4. Some degree of communication change reported by person with Parkinson’s, caregiver or health professional 5. Mini Mental Score > 24 or with mandatory carer support if lower Mini Mental score 6. Any changes in Parkinson’s medication regime or other medication/medical intervention to be documented 7. Any Speech Pathology or Music Therapy rehabilitation intervention during course of the study to be carefully documented 8. Any diagnosis and/or treatment of anxiety or depression to be documented Carers: 9. Mini Mental Score > 24 10. Any diagnosis and/or treatment of anxiety or depression to be documented

Exclusion criteria

1. Severe cognitive impairment or memory problems 2. Severe language problems or hearing impairment

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026