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Experience of a diagnosis of advanced melanoma: The perspective of bereaved family carers

A changing treatment paradigm: Bereaved family carers' perspectives of supportive and palliative care needs in advanced melanoma

Status
Completed
Phases
Unknown
Study type
Observational
Source
ANZCTR
Registry ID
ACTRN12616001667404
Enrollment
20
Registered
2016-12-02
Start date
2016-05-30
Completion date
2017-03-13
Last updated
2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The primary purpose of this study is to identify supportive and palliative care needs from the perspective of bereaved family carers of deceased advanced melanoma patients from diagnosis of advanced disease to death. Who is it for? You may be eligible to participate in this study if you are aged 18 or over, are English-speaking and were the main carer of a person who died 2 to 18 months previously as a result of melanoma. Study details All participants in this study will complete a single 30-90 minute interview about supportive care needs from diagnosis to death of a family member with advanced melanoma. It is hoped that from these interviews, researchers will identify the supportive care needs of these individuals.

Interventions

This study explores the experiences of bereaved family carers of persons who died as a result of advanced melanoma. The study uses in-depth interviews to examine the issues from the carer perspective. Single interviews will be conducted and will range in duration from 30 minutes to 90 minutes.

Sponsors

Queensland University of Technology
Lead SponsorUniversity

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

Being a bereaved family carer who provided the majority of care for a person who died 2 to 18 months previously as a result of melanoma; being a bereaved family carer of person who received treatment at Peter MacCallum Cancer Centre, Melanoma Institute of Australia or Princess Alexandra Hospital; and being 18 years or older and English speaking.

Exclusion criteria

Bereaved carers who indicate they do not wish to participate.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026