None listed
Conditions
Brief summary
This study will examine whether using an intervention that aims to increase optimal discharge support for stroke survivors and their support person (SP) impacts positively on depression, anxiety and quality of life. Optimal care includes the use of the Stroke Foundation My Stroke Journey workbook whilst an inpatient, use of the Enable Me portal after discharge, and receipt of a followup phone call 6 weeks after hospital discharge. Stroke survivor and SP pairs will be recruited post survivor discharge from stroke units. Pairs will be randomised to receive usual care or the intervention. Participants in the intervention group will receive clinician facilitated use of the My Stroke Journey workbook. Intervention participants will also receive facilitated access to Enable Me and proactive strategies to encourage use, including: a personalised letter from their stroke physician, short message service or email reminders to access the portal and letters which provide feedback to survivors and SPs on their usage of the portal. The wording used within the proactive strategies will be developed in conjunction with stroke clinicians and the Stroke Foundation. Lastly, intervention participants will receive a followup phone call from the Stroke Foundation to ensure survivors and their SPs are connected with the appropriate resources and support. The control group will receive usual care including provision of the my Stroke Journey Workbook and the 6 week phone call. Survivors and their SPs will complete a survey at baseline and followup webbased, phone or pen and paper surveys at 3 and 6 months after baseline. Quality of life, depression and anxiety among stroke survivors and their SPs will be compared at 3 and 6 months post-baseline. The outcomes of this study may inform strategies to encourage uptake of the portal in stroke units Australia-wide.
Interventions
Intervention Group: Proactive engagement group
Survivor-support person dyads allocated to proactive engagement group will receive the materials including: Stroke Foundation’s “My Stroke Journey workbook”, a follow-up phone call from the Stoke Foundation from the Stroke Connect Service at 6 weeks post discharge from hospital and access to enableme web portal. The intervention group will receive access to the web portal online as required for the duration of the intervention period (6 months). The
Intervention Group: Proactive engagement group Survivor-support person dyads allocated to proactive engagement group will receive the materials including: Stroke Foundation’s “My Stroke Journey workbook”, a follow-up phone call from the Stoke Foundation from the Stroke Connect Service at 6 weeks post discharge from hospital and access to enableme web portal. The intervention group will receive access to the web portal online as required for the duration of the intervention period (6 months). The website includes information about stroke, treatments, forums for communications with others, and goal setting functions. Proactive strategies will be used throughout the intervention period to encourage use of the web portal. Proactive engagement strategies include: a letter from their stroke physicians, short message service (SMS) or email reminders to access the portal if usage is low, and letter which provides feedback regarding their use of the portal at 3 and 6 months.
Sponsors
Universtiy of Newcastle
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Survivors will be: Patients admitted for stroke who are conscious and not requiring a high level of medical care are eligible to participate. They will be: * aged 18 years or older, * less than or equal to 3 months post first ischemic or haemorrhagic stroke or Transient Ischemic Attack, * have access to the internet, * have a mobile phone, * being discharged home or to private rehabilitation services, and * able to provide informed consent. Support person will be: * nominated by the stroke survivors as their primary source of practical and emotional support, * aged 18 years or older, * have access to the internet and * have a mobile phone, * able to give informed consent.
Exclusion criteria
Ineligible survivors will have: * severe neurological impairment not associated with stroke; * severe language or cognitive impairment; or * insufficient English to complete measures. * unable to access the internet/no phone. Ineligible support persons: * insufficient English to complete the study measures, * unable to provide independent informed consent, * unable to access the internet/no phone.
Outcome results
None listed