Patient Reported Outcome Measures for Personalised Treatment and Care Phase 2 Project - an eHealth platform in cancer patient care

Completion of patient reported outcome (PRO) measures (PROMPT-Care survey) by patients as well as providing feedback via an evaluation survey and interviews on the acceptability of the eHealth system and usefulness of the self-management resources accessed. The interventions include; a) The patients will complete the Distress Thermometer and Checklist, Edmonton Symptom Assessment Scale (ESAS) and Supportive Care Needs Survey – 9 items. Based on the patient’s results, they will be emailed links to self-management websites. These websites consist of publically available resources from reputable national (e.g. Cancer Council, Cancer Institute NSW) and international (e.g. McMillian) sources. Staff will receive a report summarising the results of the patient’s PROMPT-Care survey with recommendations for action, as developed by the study’s Clinical Advisory Group. b) The PROMPT-Care survey measures items over 4 domains: Physical wellbeing (e.g. fatigue, pain, mouth sores), emotional wellbeing (e.g. anxiety, depression, loss of interest in activities), social and family wellbeing (e.g. support from family and friends, problems with partner) and practical support (e.g. transport, housing, being informed about test results). c) The PROMPT-Care system is accessible by patients (to input PROMPT-Care survey results and to access self-management resources), staff at the cancer treatment centre (e.g. oncologists, nurse care coordinators, allied health staff), and selected members of the research team who have approval to access patients medical records using the MOSAIQ database. Results of patient surveys are integrated in to Mosaiq in which the clinician and other care providers can access report summaries to review patient reported outcomes as part of routine care. d) Frequency of use – patients on active treatment or in follow up will complete the PROMPT-Care survey every 4 weeks (includes all previously mentioned assessments), depending on the schedule of their review appointments. e) Duration of intervention = 6 months f) Patients attending clinic will be asked to complete the PROMPT-Care survey in the waiting area, using an electronic tablet device. Patients in long-term follow-up will typically complete their PROMPT-Care survey from home, however should they be attending clinic for review they will be asked to complete that monthly survey while in the waiting area. g) Strategies to monitor adherence: Patients who do not complete their PROMPT-Care surveys from home will receive reminder emails. We will also be conducting evaluation interviews with participants to get their views of the system and to discuss issues around their adherence to the project. h) Participants will be asked to fill out an evaluation survey and to attend a single interview to assess their views on the eHealth platform, which will last approximately 20 minutes. Oncology hospital staff will be asked to attend a single interview to assess their views on the eHealth platform, which will last approximately 20 minutes. i) Participants who are on-treatment at the commencement of the study and transition to follow-up care during the study will receive a Treatment Summary and Survivorship Care Plan. This care plan will be circulated to their nominated GP.