Patient Reported Outcome Measures for Personalised Treatment and Care Pilot Project - feasibility of an eHealth platform in cancer patient care.

Completion of patient reported outcome (PRO) measures (PROMPT-Care survey) by patients as well as providing feedback via an evaluation survey and interviews on the acceptability of the eHealth system and usefulness of the self-management resources accessed. The interventions include; a) The patients will complete the Distress Thermometer and Checklist, Edmonton Symptom Assessment Scale (ESAS) and Supportive Care Needs Survey – 9 items. Based on the patient’s results, they will be emailed links to self-management websites. These websites consist of publically available resources from reputable national (e.g. Cancer Council, Cancer Institute NSW) and international (e.g. McMillian) sources. Staff will receive a report summarising the results of the patient’s PROMPT-Care survey with recommendations for action, as developed by the study’s Clinical Advisory Group. b) The PROMPT-Care survey measures items over 5 domains: Physical wellbeing (e.g. fatigue, pain, mouth sores), emotional wellbeing (e.g. anxiety, depression, loss of interest in activities), functional wellbeing (e.g. getting around, memory and cognition), social and family wellbeing (e.g. support from family and friends, problems with partner) and practical support (e.g. transport, housing, being informed about test results). c) The PROMPT-Care system is accessible by patients (to input PROMPT-Care survey results and to access self-management resources), staff at the cancer treatment centre (e.g. oncologists, nurse care coordinators, allied health staff), and selected members of the research team who have approval to access patients medical records using the MOSAIQ database. d) Frequency of use – patients on active treatment will complete the PROMPT-Care survey every 2-4 weeks, depending on the schedule of their review appointments. Patients in long-term follow-up care will be asked to complete the survey on a monthly basis. Patients completing the PROMPT-Care survey every 2-3 weeks will complete the Distress Thermometer and Checklist, and ESAS only. The Supportive Care Needs Survey is only administered on every second assessment for participants completing the PROMPT-Care Survey every 2-3 weeks as that measure has been validated using a 4 week time frame. Participants completing the PROMPT-Care survey on a monthly basis will always complete the full assessment (i.e. DT and checklist, ESAS and Supportive Care Needs Survey-9 items) An assessment schedule is established when the participant enters the study that indicates the frequency and pattern of assessments that the participant will receive. e) Duration of intervention = 3-4 months f) Patients attending clinic will be asked to complete the PROMPT-Care survey in the waiting area, using an electronic tablet device. Patients in long-term follow-up will typically complete their PROMPT-Care survey from home, however should they be attending clinic for review they will be asked to complete that monthly survey while in the waiting area. g) Strategies to monitor adherence: As this is a pilot project to determine the feasibility and acceptability of the PROMPT-Care system we will send patients who do not complete their PROMPT-Care surveys from home one reminder email. We will also be conducting evaluation interviews with participants to get their views of the system and to discuss issues around their adherence to the project. Participants will be asked to fill out an evaluation survey and to attend a single interview to assess their views on the eHealth platform, which will last approximately 20 minutes. Oncology hospital staff will be asked to attend a single interview to assess their views on the eHealth platform, which will last approximately 20 minutes.