Pilot testing of a decision aid for nutrition support in paediatric oncology.

For parents and clinicians of paediatric oncology patients with malnutrition, is the decision aid about nutrition support acceptable, usable and comprehensible? (No control group)

Status

Completed

Phases

Unknown

Study type

Observational

Source

ANZCTR

Registry ID

ACTRN12615001082594

Enrollment

Registered

2015-10-14

Start date

2015-08-27

Completion date

2015-11-06

Last updated

2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The primary purpose of this study is to investigate the acceptability, usability and comprehensibility of a decision aid which aims to help parents make a decision about nutrition support to treat malnutrition during their child's cancer treatment. Who is it for? You may be eligible to participate in this study if you are the parent, carer or clinician of a child who has been diagnosed with cancer or a haematological condition at the Kids Cancer Centre at Sydney Children's Hospital, and have had to consider nutrition support in the past five years. Study details: All participants recruited in this study will be asked to read the decision aid and then complete a questionnaire regarding its acceptability, usability and comprehensibility. It is hoped that the findings of this pilot study may be used to support the implementation of the decision aid to inform parents and carers facing choices regarding their children's nutrition support during cancer treatment.

Interventions

A print booklet decision aid about nutrition support options for treating malnutrition in paediatric oncology patients. A decision aid is a patient information booklet with an emphasis on guidance about making a decision. The options described are oral nutrition support, nasogastric tube feeding, gastrostomy tube feeding and total parenteral nutrition.

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Healthy volunteers

Yes

Inclusion criteria

Parent/carers and clinicians of children who a) have been diagnosed with cancer or a haematological condition at the Kids Cancer Centre at Sydney Children's Hospital; and b) have had to consider nutrition support in the past five years.

Exclusion criteria

Inadequate English language skills

Outcome results