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An online program for carers of people with dementia on management of behavioural and psychological symptoms

In carers of people with dementia, what is the effect of an online program on managing behaviours common in dementia compared with an education website on levels of carer stress related to behavioural and psychological symptoms?

Status
Completed
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12615000509561
Enrollment
69
Registered
2015-05-21
Start date
2015-05-04
Completion date
2016-01-20
Last updated
2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Dementia is the single greatest cause of disability in older Australians and the third leading cause of disability burden in Australia. Due to our aging population the number of Australians living with dementia is expected to increase rapidly over the next decade placing additional burden on the health system and on the unpaid/family carers of people with dementia. Behavioural changes occur in 90% of people with dementia. These changes are stressful and challenging for carers. The purpose of this study is to examine an online educational training program that teaches carers of people with dementia ways to manage common behaviours. It is expected that the program will reduce carer burden and stress.

Interventions

The online program for carers of people with dementia is comprised of an educational fact sheet explaining (i) dementia, (ii) behaviour changes in people with dementia, and (iii) how to plan activities for people with dementia. It also includes 20 animations exploring behaviours common in dementia and 20 associated problem-solving worksheets that allow the participant to apply the videos to their own situation. Carers can access the program as many times as they would like by logging in online o

The online program for carers of people with dementia is comprised of an educational fact sheet explaining (i) dementia, (ii) behaviour changes in people with dementia, and (iii) how to plan activities for people with dementia. It also includes 20 animations exploring behaviours common in dementia and 20 associated problem-solving worksheets that allow the participant to apply the videos to their own situation. Carers can access the program as many times as they would like by logging in online over 8 weeks. Adherence is monitored by collecting self-report and user-access data.

Sponsors

University of New South Wales
Lead SponsorUniversity

Study design

Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

*Unpaid/family carer of a person with moderate to severe dementia *Australian resident *18 years of age or older *Fluent in written English *Access to internet with PDF reader and valid email address *Willingness to give written informed consent and willingness to participate in and comply with the study.

Exclusion criteria

Those who do not fulfil inclusion criteria

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026