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The Home First Study: Patient and Caregiver Preferences for Home Dialysis.

Patient and caregivers identification of the key attributes between home and facility dialysis which contribute to the uptake of home dialysis.

Status
Completed
Phases
Unknown
Study type
Observational
Source
ANZCTR
Registry ID
ACTRN12615000314527
Enrollment
244
Registered
2015-04-07
Start date
2014-08-29
Completion date
2016-07-01
Last updated
2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The rates of chronic kidney disease are increasing rapidly. Home dialysis is believed to offer better survival, quality of life and is not as expensive as hospital dialysis. Despite this the rates of home dialysis are low and in some countries like NZ declining. This research explores patient and caregivers perceptions of what influences their decision about whether they choose home or hospital dialysis. We will firstly interview patients to determine these factors and then we will send surveys based on what we find in the patient and caregiver interview so we can determine what factors patients and caregivers are more influential in this decision making process.

Interventions

Key attributes which influence patient and caregivers decision to uptake home dialysis. These attributes will be identified in qualitative interviews (1 interview approximately 60-90 minutes in duration)with patients and caregivers who have received formal education on dialysis modalities or who have commenced on dialysis within the last twelve months. Discrete choice experiment surveys based on the results of the interviews will then be conducted to a group of approximately 150 patients and car

Key attributes which influence patient and caregivers decision to uptake home dialysis. These attributes will be identified in qualitative interviews (1 interview approximately 60-90 minutes in duration)with patients and caregivers who have received formal education on dialysis modalities or who have commenced on dialysis within the last twelve months. Discrete choice experiment surveys based on the results of the interviews will then be conducted to a group of approximately 150 patients and caregivers.

Sponsors

The University of Sydney
Lead SponsorUniversity

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

Patients or caregivers over 18 years old who are currently under the care of one of three renal units in New Zealand: Hawke's Bay, Counties Manukau or Capital and Coast District Health Boards who have either received formal pre-dialysis education (Pre-dialysis) or have commenced dialysis (facility or home haemodialysis or peritoneal dialysis) within the last twelve months.

Exclusion criteria

Patients or caregivers unable to provide informed consent.

Outcome results

None listed

Source: ANZCTR · Data processed: Mar 5, 2026