Skip to content

Effect of a pilot support intervention for informal caregivers of people with motor neuron disease on psychological morbidity

Effect of a pilot support intervention for informal caregivers of people with motor neuron disease on psychological morbidity

Status
Not yet recruiting
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12615000120572
Enrollment
30
Registered
2015-02-10
Start date
2015-03-02
Completion date
2015-03-31
Last updated
2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

This study aims to develop, provide and evaluate a new group based activity for people who provide care for someone with Motor Neuron Disease. The purpose of this group based activity will be to create a supportive environment to share personal experiences about changes to the caregiver's life associated with caring for a person with Motor Neuron Disease. It will also provide a supportive environment to learn about mindfulness, problem solving and other support resources available. The intervention will be administered by two psychologists to a small group of caregivers.

Interventions

This is a one-off group based intervention with a duration of two hours thirty minutes. The purpose of this group based activity will be to create a supportive environment to share personal experiences about changes to the caregiver's life associated with caring for a person with Motor Neuron Disease. It will also provide a supportive environment to learn about mindfulness, problem solving and other support resources available. The intervention will be administered by two psychologists to a smal

This is a one-off group based intervention with a duration of two hours thirty minutes. The purpose of this group based activity will be to create a supportive environment to share personal experiences about changes to the caregiver's life associated with caring for a person with Motor Neuron Disease. It will also provide a supportive environment to learn about mindfulness, problem solving and other support resources available. The intervention will be administered by two psychologists to a small group of caregivers.

Sponsors

Centre for Palliative Care St Vincent's Hospital
Lead SponsorHospital

Study design

Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

1. Informal caregiver of person diagnosed with motor neuron disease in the past twelve months; 2. Be at least 18 years of age; 3. Be able to read, write and speak English.

Exclusion criteria

1. Diagnosed with a severe cognitive or psychological disorder; 2. Unaware of the diagnosis of the person they care for.

Outcome results

None listed

Source: ANZCTR · Data processed: Mar 1, 2026