None listed
Conditions
Brief summary
The primary goal of the present research is to identify the educational needs of New Zealanders suffering from gout, with particular attention paid to the unique needs of different social groups. We aim to determine ways that patient education can be encompassed in a package of care for gout patients. The present research will investigate three core questions: 1) What resources are gout patients currently lacking with regards to gout management? 2) Are there variations in the educational needs of patients with gout based on ethnicity (Maori versus non-Maori) or where they live (urban versus rural)? 3) How do gout patients want health information relayed to them, and does this depend on status as Maori/non-Maori or urban/rural? We hypothesize that Maori, non-Maori, rural, and urban New Zealanders will report some common and some unique barriers to gout management and will have differing levels of knowledge about self-management of gout. We also predict that these groups will differ in how they would prefer gout health information presented.
Interventions
This research aims to identify the educational needs of New Zealanders suffering from gout, with particular attention paid to the unique needs of different social groups. We aim to determine ways that patient education can be encompassed in a package of care for gout patients. Focus groups with gout patients will be used to explore patients' experiences and perceptions of current care, and to explore new methods for encouraging patients to take their prescribed medications and make the lifestyle
This research aims to identify the educational needs of New Zealanders suffering from gout, with particular attention paid to the unique needs of different social groups. We aim to determine ways that patient education can be encompassed in a package of care for gout patients. Focus groups with gout patients will be used to explore patients' experiences and perceptions of current care, and to explore new methods for encouraging patients to take their prescribed medications and make the lifestyle and dietary changes necessary for preventing gout attacks and reducing the risk of comorbidities. Patients who consent to participate will complete a questionnaire assessment of their gout history and treatment and will participate in a one-off focus group session lasting 2-3 hours. Health information for each patient will also be obtained through a brief GP questionnaire. Following study completion, this data will be used to develop educational resources within a package of care that is based upon health psychology models of behaviour to effectively encourage behaviour change. Particular focus will be given to the unique needs of different sociocultural groups, with the understanding that a “one size fits all” initiative may not be suitable for the diverse population of gout sufferers. Participants in the study will be Maori and non-Maori, as well as from urban and rural areas of New Zealand. It is anticipated that any resources developed for gout patients will need to be individually tailored for these diverse sociocultural groups. This research will provide the groundwork for improving health outcomes for people with gout, while also demonstrating the importance of taking a patient-centred approach and individualizing patient care initiatives based on social and cultural differences. The results of this research are expected to advance our understanding of the patient experience of gout as well as the strategies that will be most successful in improving their health outcomes.
Sponsors
Prof Lisa Stamp
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Diagnosis of gout; lives in Christchurch or Wairoa; NZ European or NZ Maori; able to attend a focus group session
Exclusion criteria
The only exclusion criteria is patients who are unable to give consent.
Outcome results
None listed