None listed
Conditions
Brief summary
Care-navigators are used to help patients with the complex care associated with cancer, but have not been studied widely in the setting of stroke. This study will evaluate a professional stroke navigator service to assist people who experience a stroke, and their family/whanau, to negotiate the healthcare system. We hope this will increase interaction, and satisfaction, with health service providers, helping the patient and family/whanau to manage the on-going challenges that stroke imposes. The navigator will work with the patient and whanau before they leave hospital and for six months afterwards. The aim is to improve the emotional and physical wellbeing and safety of the patient and family/whanau through increased informative and beneficial interactions with health professionals and the wider healthcare system. This will be tested in a clinical trial, where the stroke navigator group outcomes will be compared to a group of patients receiving usual care.
Interventions
Navigation services provided by a stroke navigator in the first 6 months post stroke across the care continuum (in-patient and community based). Rather than applying a ‘one size fits all’ approach, the stroke navigator (trained in care navigation) will work alongside the extended family to assess, identify and address individual/ family needs with the aim of improving the wellbeing of both family and patient. An extensive scoping literature review (McKechnie et al., submitted for publication) has not identified any data on what the expected workload of the stroke navigator might be. Following discussions with our stakeholders and other anecdotal evidence we have estimated an average of three hours per family per week over the six month intervention phase of the study. With individual family needs and the nature of the post-stroke trajectory, it is anticipated that there will be times when the stroke navigator may work more than three hours a week with a family; at other times less. We anticipate there will be a degree of flexibility in the type of interaction (e.g. face-to-face, phone, email) and the time required to meet the needs of specific families.
Sponsors
Study design
Eligibility
Inclusion criteria
People (aged over 18 years) who experience a stroke and are admitted to one of two local hospitals AND have at least two members of their extended family (aged over 18 years) willing to participate.
Exclusion criteria
Inability to communicate in English