Helping Older Patients with End-stage kidney disease: survival, symptom control and quality of life without dialysis

Experiences of Palliative Nephrology and Pre-Dialysis Clinics (EXPAND): survival, symptom control and quality of life of patients not planned for dialysis who are receiving renal supportive care.

Status

Completed

Phases

Unknown

Study type

Observational

Source

ANZCTR

Registry ID

ACTRN12614000112662

Acronym

EXPAND: HOPE

Enrollment

480

Registered

2014-01-29

Start date

2009-03-03

Completion date

2009-03-27

Last updated

2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

A combined palliative and nephrology, Renal Supportive Care clinic was established in March 2009. This research aims to describe the impact of a specialised palliative nephrology service on outcomes and will put this in context by also describing outcomes of patients who are managed in standard renal clinics (pre-dialysis clinic). The data collected is collected as part of standard medical care.

Interventions

We sought to learn prospectively the likely survival of patients not planned for dialysis and whether or not they could be provided with reasonable quality of life and control of their symptoms. This prospective observational study was over 4 years.

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

Inclusion criteria were patients referred to either pre-dialysis clinic or the Renal Supportive Care clinic over 18 years with ability to provide informed consent.

Exclusion criteria

Excluded were those patients planned for pre-emptive transplantation and patients who moved out of the area.

Outcome results