None listed
Conditions
Brief summary
The research design to be employed is a cluster randomized controlled trial of a multi-component intervention designed to improve the experience of Residential Respite Care (RRC) for people with dementia and their carers. Clustering will occur at the facility level with randomisation by necessity occurring at this level in order to prevent contamination of results due to changed processes during RRC admission required by the intervention. Thus, two facilities will be allocated as the intervention facilities and two as control facilities. Random allocation will occur via a random number generator. The program will provide support and communication before, during and after residential respite admission in order to facilitate the transition to respite care. Participants with dementia (PWD) and their carers will be interviewed face – to –face and also complete self –report instruments 2 weeks prior to moving into RRC. Allocation of residents will occur to either intervention or control group and all will be assessed during RRC admission. PWD and their carers will be interviewed face to face and asked to complete self report measures when transiting back to home care. PWD and their carers will be interviewed via telephone and asked to complete self report measures three months following return to home care.
Interventions
The TC-PCC Intervention is a structured, person-centred approach aimed at facilitating a positive residential respite care experience for both people with dementia and their carers at each stage of the process of using residential respite care, from the preparation for respite care, through the respite experience and after the return home. Intervention will commence 1-2 weeks prior to admission and continues throughout the length of the respite admission (approximately 1-6 weeks) for a total d
The TC-PCC Intervention is a structured, person-centred approach aimed at facilitating a positive residential respite care experience for both people with dementia and their carers at each stage of the process of using residential respite care, from the preparation for respite care, through the respite experience and after the return home. Intervention will commence 1-2 weeks prior to admission and continues throughout the length of the respite admission (approximately 1-6 weeks) for a total duration ranging from 3-8 weeks depending on length of admission. A core feature of the Intervention is a liaison nurse, who will be the pivotal point of connection between the dyad and Residential Aged Care Facility (RACF) staff. The specific components of the Intervention include: A. Structured Person-Centred Communication (Respite Care Personal Profile; Pre-admission case conference between liaison nurse, care recipient and caregiver; up to daily call/email to care giver from liaison nurse to provide up to date feedback on care recipients status; exit interview from liaison nurse to give hand over to caregiver); and B. Person-Centred preparation for respite experience: prepare simple memory book to aid transition; familiar items bag; and carer comfort review to establish what support the caregiver needs.
Sponsors
Queensland University of Technology
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Prevention
Masking
Blinded (masking used) (Subject, Investigator, Outcomes Assessor)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Group 1: Intervention group (n=10) - 65 years and older, with a diagnosis of dementia, with a confirmed booking for residential respite Group 2: Control group (n=10) - 65 years and older, with a diagnosis of dementia, with a confirmed booking for residential respite Group 3: Family caregiver intervention group (n=10): care giver of person with dementia, aged over 18 years, directly responsible for the care of participating person with dementia, have known person with dementia for more than 10 years, have 3 contacts per week with person with dementia Group 4: Family caregiver control group (n=10): care giver of person with dementia, aged over 18 years, directly responsible for the care of participating person with dementia, have known person with dementia for more than 10 years, have 3 contacts per week with person with dementia Group 5: Liaison Nurse (n=2): Registered, enrolled or endorsed enrolled nurses working at the intervention facilities, 21 years and older
Exclusion criteria
Carers under the age of 18 years, no diagnosis of dementia, no residential respite booking
Outcome results
None listed