None listed
Conditions
Brief summary
The overall aim of this project is to investigate the extent to which a carer assessment tool of support needs in end of life home care (CSNAT) improves perceived support, carers’ psychological and physical wellbeing, carer burden, bereavement outcomes and the likelihood of the patient achieving their preferred place of death. The CSNAT is a brief tool (14 items on two A5 pages), and is used to elicit carer concerns early, in a systematic way to achieve better outcomes pre and post bereavement. The tool has two sets of items which cover: 1. support that enables the carer to care for the patient at home 2. support for the carer in their caring role
Interventions
The CSNAT is used to elicit carer concerns in a systematic way.It has two sets of items administered together on the form and it takes 15 minutes to complete the form. The CSNAT is administered by the nurse face to face during the home visit:
- the first set covers support that enables the carer to care for the patient at home, such as understanding the patient’s illness; knowing what to expect in the future; knowing who to contact; managing symptoms and medicines; providing personal care (dress
The CSNAT is used to elicit carer concerns in a systematic way.It has two sets of items administered together on the form and it takes 15 minutes to complete the form. The CSNAT is administered by the nurse face to face during the home visit: - the first set covers support that enables the carer to care for the patient at home, such as understanding the patient’s illness; knowing what to expect in the future; knowing who to contact; managing symptoms and medicines; providing personal care (dressing and toileting); equipment; talking to care recipient about his or her illness. - the second set covers support for the carer in their caring role, such as looking after own health; dealing with feelings and worries; practical help; emotional support and respite. A stepped wedge design (explained under design section) to assess the impact of the intervention, an intervention group using CSNAT and a control group using standard care, with 220 carers in each group (total 440 carers). Data collection will span over 2 years.
Sponsors
Curtin University
Study design
Allocation
Randomised controlled trial
Intervention model
Other
Primary purpose
Prevention
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Healthy volunteers
Yes
Inclusion criteria
Inclusion criteria: Resident carer (co-habiting); patients and carers are adults; carer reads and writes English; carer has no cognitive impairment; patient with cancer and non-cancer diagnoses.
Exclusion criteria
Carer cannot read or write English, Carer has cognitive impairment
Outcome results
None listed