The development of a quality of life instrument specific to treatment effects in autoimmune bullous disease

Patients with clinically and histologically diagnosed autoimmune bullous disease will participate in the development of a disease specific quality of life instrument. Through the use of focus groups during one 2 hour interview process- they will express the ways in which the treatments and medications they take for their blistering diseases affects their quality of life. Based on these responses, a pilot questionnaire will be developed. Patients will then be asked to complete the pilot questionnaire once. Statistical analyses will be completed on the responses to determine whether the questionnaire is a statistically sound. The period for focus groups, development of questionnaire and distribution of questionnaire will be initially 6 months.