None listed
Conditions
Brief summary
This study will assess the efficacy of the 'Supporting Men, Supporting Women' website in providing information for men supporting women through genetic testing for breast/ovarian cancer. It aims to help men understand and cope with genetic testing, and communicate and support women throughout this process. We expect that individuals accessing this website will have low levels of distress, feel satisfied with the extent of support offered and received in their relationship, have high knowledge of genetic testing and feel satisfied with genetic information.
Interventions
The 'Supporting Men, Supporting Women' web-based intervention aims to increase men’s understanding of the genetic testing process and to facilitate their personal coping, as well as their ability to communicate and provide support to woman at risk for developing breast and/or ovarian cancer. 'Supporting Men, Supporting Women' is organised in a menu-driven modular format, with each module addressing an identified area of concern and need for male support partners. As well as providing a thorough explanation of the genetic testing process, it offers information about women’s typical and preferred coping responses, and the implications of different testing results, including surveillance and preventive options. The intervention is unique in that it also provides information from the male perspective including: common responses of male partners to being a support person; ways for men to cope with these responses; guidance for how male partners can support the woman through testing process (including videos providing simple strategies for recognising and reducing stress); and, how couples can effectively communicate with each other and with other family members about genetic testing and its implications. In addition to usual care received throughout the genetic testing process (genetic testing of a blood sample as well as genetic counseling prior to, and following, test result disclosure), both male and female participants in the intervention group will receive full and immediate access to the Supporting Men, Supporting Women web-based intervention for the duration of the study (4 months). Please note that there is no minimum or maximum amount of time participants are required to use this website.
Sponsors
Study design
Eligibility
Inclusion criteria
Eligibility criteria for inclusion of women in the study will be (a) over 18 years of age; (b) a candidate for BRCA1/2 testing for breast/ovarian cancer susceptibility, (c) access to a computer connected to the internet; (d) ability to read and understand English; (e) informed consent and (f) nominated male support partner. Eligibility criteria for inclusion of men in the study will be (a) over 18 years of age; (b) supporting a woman through BRCA1/2 testing for breast cancer susceptibility (may be the woman’s husband or partner, brother, father, uncle or friend), (c) access to a computer connected to the internet; (d) ability to read and understand English and (e) informed consent.
Exclusion criteria
Women who do not have a male support partner or who are not undergoing genetic testing for breast/ovarian cancer risk.