None listed
Conditions
Brief summary
The purpose of this project is to develop a quality of life instrument specific to autoimmune bullous disease. Patients with clinically and histologically diagnose autoimmune bullous disease will be recruited and interviewed regarding the ways their disease affects their quality of life. Based on these responses, a pilot questionnaire will be developed and given to 70 patients. Statistical analysis will then be performed based on the results of these questionnaires to determine whether the instrument is statistically sound or not. If it is validated, the instrument can then be used as a tool to measure quality of life in patients with autoimmune blistering skin diseases.
Interventions
Patients with clinically and histologically diagnosed autoimmune bullous disease will participate in the development of a disease specific quality of life instrument. They will express the ways in which their blistering diseases affects their quality of life. Based on these responses, a pilot questionnaire will be developed. Patients will then be asked to complete the pilot questionnaire once. Statistical analyses will be completed on the responses to determine whether the questionnaire is a sta
Patients with clinically and histologically diagnosed autoimmune bullous disease will participate in the development of a disease specific quality of life instrument. They will express the ways in which their blistering diseases affects their quality of life. Based on these responses, a pilot questionnaire will be developed. Patients will then be asked to complete the pilot questionnaire once. Statistical analyses will be completed on the responses to determine whether the questionnaire is a statistically sound.
Sponsors
Australasian Blistering Diseases Foundation
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Clinically and histologically diagnosed autoimmune bullous disease
Exclusion criteria
Limited fluency in English
Outcome results
None listed