None listed
Conditions
Brief summary
We aim to conduct a mixed methods evaluation of the impact on patients of a 6 week mindfulness and Essence based lifestyle program with community living adults with disability congruent with stage 2 (Hoehn and Yahr staging) Parkinson’s Disease. Quantitative study aims. To determine whether: 1. Participation in a 6 week mindfulness and Essence based lifestyle program improves PD disease related function in patients with disability consistent with stage 2 Parkinson’s disease? 2. In these patients, does the Essence program influence patient a) health beliefs; b) mental and emotional health; c) health locus of control? Qualitative study aims. To better understand: 3. What are the experiences of patients with PD attending the mindfulness based intervention? 4. Beliefs about disease management before and after the program? 5. How attitudes towards their health efficacy evolve over the course of the program? 6. What aspects of the program were most valuable and meaningful? 7. How people engaged with the program?
Interventions
The intervention, called the Essence program, is undertaken by participants over six weeks – i.e. one 90 minute session per week for six weeks.
The Essence program is a mindfulness and lifestyle course developed and delivered by Dr Craig Hassed from Monash University. ‘Essence’ stands for Education, Stress management, Spirituality (meaning), Exercise, Nutrition, Connectedness (social support) and Environment.
The short course will explore the potential role each of these elements has in managi
The intervention, called the Essence program, is undertaken by participants over six weeks – i.e. one 90 minute session per week for six weeks. The Essence program is a mindfulness and lifestyle course developed and delivered by Dr Craig Hassed from Monash University. ‘Essence’ stands for Education, Stress management, Spirituality (meaning), Exercise, Nutrition, Connectedness (social support) and Environment. The short course will explore the potential role each of these elements has in managing Parkinson’s and improving quality of life. The program will introduce participants to simple strategies that can help them to live well with Parkinson’s disease and they will be encouraged, but not pressured, to apply aspects of the Essence model that are most relevant to their own lives. Sessions will be run in groups of 20-30, and will be held in metropolitan Melbourne.
Sponsors
Southern Academic Primary Care Research Unit
Study design
Allocation
Randomised controlled trial
Intervention model
Other
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to 70 Years
Healthy volunteers
No
Inclusion criteria
Eligibility criteria require that all volunteer participants: * Are 70 years old or younger * Are fluent in English * Can attend at least 4 of 6 sessions of a the mindfulness based lifestyle program * Are community living adults with disability congruent with stage 2 Parkinson’s disease (Hoehn and Yahr staging) i.e. can answer ‘yes’ to the two following questions ** Do you have problems of shaking (tremor), stiffness or difficulty with movements on both sides of your body? ** Most of the time you can you walk straight and stand up without assistance? (i.e. not severe)
Exclusion criteria
Excluded if they cannot commit to attending at least 4 of 6 sessions of a the mindfulness based lifestyle program
Outcome results
None listed