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A strategy to increase rates of patients recruited from an Australian Cancer Registry: A study involving survivors of haematological malignancies

In a registry based sample of adult haematological cancer survivors, what is the effect of an enhanced invitation letter on participation rates with participation rates of haematological cancer survivors who receive the standard registry letter?

Status
Completed
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12611000892910
Enrollment
800
Registered
2011-08-22
Start date
2010-09-20
Completion date
Unknown
Last updated
2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

We have conducted a RCT sub-study within the recruitment phase of a larger project utilising an Australian Cancer Registry to recruit survivors of a haematological study. This sub-study aimed to test the effect of two different patient invitation and reminder letters on participation rates to the study from patients. The first invitation and reminder letters were the standard letters sent by the Cancer Registry. Patients receiving this letter acted as the control arm of the intervention. The second invitation and reminder letters were modified versions of the standard letters incorporating specific changes to wording and formatting which have been identified as potentially increasing suitability, readability and legibility.

Interventions

The intervention strategy is a modified version of the standard invitation and reminder letters sent from the Cancer Registry. The intervention letters are modified by incorporating specific changes to wording and formatting which have been identified as potentially increasing suitability, readability and legibility of written communication. Patients receiving the modified letters will make up the experimental arm of the study. Both the enhanced letter (intervention strategy) and the standard le

The intervention strategy is a modified version of the standard invitation and reminder letters sent from the Cancer Registry. The intervention letters are modified by incorporating specific changes to wording and formatting which have been identified as potentially increasing suitability, readability and legibility of written communication. Patients receiving the modified letters will make up the experimental arm of the study. Both the enhanced letter (intervention strategy) and the standard letter (control) were sent to participants via mail. Mailing of the invitation letters was carried out over several days. If participants had not responded to the invitation letter approximately 4 weeks after they were mailed a reminder letter (an enhanced reminder for the intervention group and the standard reminder letter for the control group) was sent to non-responders via mail. Again mailing of the reminder letters occurred over several days.

Sponsors

University of Newcastle
Lead SponsorUniversity

Study design

Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Blinded (masking used)

Eligibility

Sex/Gender
All
Age
18 Years to 80 Years
Healthy volunteers
No

Inclusion criteria

Participants were survivors identified by the Cancer Registry as: * Having been diagnosed between 1 July 2007 and 30 June 2010 * Diagnosed with a blood cancer (including leukaemias, lymphomas and myelomas) * Aged between 18 and 80 years. * Alive.

Exclusion criteria

Survivors were ineligible to participate if they were: * Deceased; * Had previously indicated to the Cancer Registry that they did not wish to be contacted about participating in research studies; * Were uncontactable.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026