Quality of Life in Boys with Duchenne Muscular Dystrophy

Activity Limitation Study and Quality of Life in Boys with Duchenne muscular dystrophy

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ANZCTR

Registry ID

ACTRN12611000458932

Enrollment

Registered

2011-05-04

Start date

2008-08-01

Completion date

Unknown

Last updated

2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The DMD progression cause a significant activities limitations due to muscle weakness were boys become chair bound in their early teens. These limitations affect daily activities such locomotion. However, there are no data to show how functional limitations affect activities and quality of life (QOL) of these patients. The objective of this study is to analyze the influence of functional status in quality of life of patients with DMD.

Interventions

Assessment of activity limitation and quality of life. The subjects were evaluated in a single day. To assess the activity limitations, we used the manual test of strength in the flexor muscles of the shoulder, elbow flexors, wrist flexors, hip flexors, knee extensors and dorsiflexors. The scales of measurement limitations were EK and FIM. To assess the quality of life, AUQEI validated questionnaire was used. In each patient the time of the evaluation lasted approximately 40 minutes.

Eligibility

Sex/Gender

Male

Age

4 Years to 14 Years

Healthy volunteers

Inclusion criteria

Definitive diagnosis of DMD Signing the consent form Subjects over 4 years old

Exclusion criteria

No definitive diagnosis of DMD Subjects under 4 years old Cognitive deficit

Outcome results