None listed
Conditions
Brief summary
Examining the effects of facilitated advance care planning conversations
Interventions
facilitated advance care planning conversations with documentation of any resultant decision-making. This will involve a semi-structured interview that addresses goals of care and treatment options as well as end-of-life decision making that will be lead by a single trained facilitator. The conversations will take on average 1 hour and follow-up conversations will occur on an as neded basis depending up[on the needs of the individual patients. Family members will be involved in these conversa
facilitated advance care planning conversations with documentation of any resultant decision-making. This will involve a semi-structured interview that addresses goals of care and treatment options as well as end-of-life decision making that will be lead by a single trained facilitator. The conversations will take on average 1 hour and follow-up conversations will occur on an as neded basis depending up[on the needs of the individual patients. Family members will be involved in these conversations if identified as patients as being important for decison-making. It is anticipated that for those patients who have family members that live in close proximity, that family participation will be requested by the patient.
Sponsors
University Hospital Foundation
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Blinded (masking used)
Eligibility
Sex/Gender
All
Age
18 Years to 99 Years
Healthy volunteers
No
Inclusion criteria
1. Patients: 1) incident pre end stage renal disease (ESRD) enrolled within the Renal Insufficiency Clinic at the University of Alberta with an expected time to dialysis of less than 12 months* or (2) incident cases of ESRD where patients have just started chronic hemodialysis or peritoneal dialysis within the past 1 month, (3) older than 18 years of age, (4) cognitively able to complete the questionnaires and give informed consent, and (5) able to converse and complete the questionnaires in English. 2. Family: (1) the primary family caregiver; (2) older than 18 years of age; (3) cognitively able to complete the questionnaires and give informed consent; and (4) able to converse and complete the questionnaires in English. * Nephrologists are required to assess whether the patient is likely to progress to ESRD within 6 or 12 months upon referral to the Renal Insufficiency Clinic ( based on clinical judgment).
Exclusion criteria
Patients who do not meet criteria as indicated above.
Outcome results
None listed