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Communication and Environmental Control for People with Friedreich Ataxia (FA)

Does Communication and Environmental Control Technology Meet the Needs of People with Advanced Friedreich Ataxia ?

Status
Not yet recruiting
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12610000303044
Enrollment
12
Registered
2010-04-16
Start date
2010-05-01
Completion date
Unknown
Last updated
2020-01-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

The project aims to: 1. Determine the communication, computer and environmental control technology product needs for individuals with advanced FA. 2. Develop an online resource regarding equipment specific to the needs identified. 3. Prepare a funding proposal for equipment and resources not yet available.

Interventions

Occupational therapist to assess individual's ability to read and write, use a computer, and operate household appliances such as doors, lights, television and music system WITH the use of alternate computer access equipment, environmental control and communication technology. A one-off 2 hour session will be undertaken where the participant will trial the computer access and environmental control technology. An Occupational Therapist will facilitate this trial and will set up the equipment and

Occupational therapist to assess individual's ability to read and write, use a computer, and operate household appliances such as doors, lights, television and music system WITH the use of alternate computer access equipment, environmental control and communication technology. A one-off 2 hour session will be undertaken where the participant will trial the computer access and environmental control technology. An Occupational Therapist will facilitate this trial and will set up the equipment and monitor the trial. The appropriate technology will be selected based on the in-depth interview completed and the therapists assessment outlined above. The control arm outlined below will be completed first. The intervention arm will be completed on the same day after a 15 minute break.

Sponsors

Ability Technology
Lead SponsorCharities/Societies/Foundations

Study design

Allocation
Non-randomised trial
Intervention model
Crossover
Primary purpose
Treatment
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

People with advanced FA with difficulties in reading, writing, computer access or control of home environment appliances e.g. doors, lights, TV, and their support people e.g. immediate family member, or primary carer.

Exclusion criteria

People under age 18 years.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026