None listed
Conditions
Brief summary
This study will generate evidence for an intervention (Phase 1) which addresses the psychosocial distress related to not eating amongst those at the end of life, and test the efficacy of this intervention (Phase 2), as well as examine relationships between ERD and other factors. It is hypothesized that the intervention will significantly reduce eating related distress and dyadic distress.
Interventions
6-8 page interactive booklet with information about eating related distress and mechanisms for readers (patients or family carers) to become more self aware about how they contribute to this psychosocial distress, and suggestions for how to address this distress. The way the participants read the booklet will not be monitored; however, post-intervention questions include one assessing for how long the participant read the intervention booklet. The experimental group participants will be given th
6-8 page interactive booklet with information about eating related distress and mechanisms for readers (patients or family carers) to become more self aware about how they contribute to this psychosocial distress, and suggestions for how to address this distress. The way the participants read the booklet will not be monitored; however, post-intervention questions include one assessing for how long the participant read the intervention booklet. The experimental group participants will be given the intervention booklet at Time 1, and then after they have had it 1-3 weeks, they will be given the Time 2 questionnaires.
Sponsors
Mary Potter Hospice
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
hospice patient or primary family carer of; 18 years or older; able to understand spoken English
Exclusion criteria
absence of nurse-observed mental or psychiatric impairment (other than situational depression)
Outcome results
None listed