None listed
Conditions
Brief summary
This study looks at the effectiveness of a communication tool called ‘It's okay to ask’ in facilitating information exchange for adults with brain tumours. Who is it for? You can join this study if you: 1. live in Queensland 2. have been diagnosed with a primary brain tumour 3. have attended initial consultation with selected neurosurgeons in the last 2 weeks. Trial details A question prompt list (QPL) is a structured list of questions for a patient or their carer to ask a doctor if they want to. It is designed to encourage participants to ask questions in the medical consultation, empowering them to seek answers to important questions, and enabling them to share personalised information. Work is underway to develop a QPL specifically for adults diagnosed with a primary brain tumour and their caregivers. This pilot study aims to determine: 1. if the QPL is acceptable to participants 2. if and how participants use it 3. the requirements for implementing the QPL 4. how well it works in improving information exchange.
Interventions
Provision of a brain tumour-specific question prompt list (QPL) within two weeks of first neurosurgical consultation. The QPL provides patients with a list of questions which have been useful to previous patients. It aims to assist individuals to actively participate in their clinical consultations through
asking proposed questions of healthcare providers. The QPL is thus designed to provide a framework within
which patients and carers can organise their information needs and follow pathways to
Provision of a brain tumour-specific question prompt list (QPL) within two weeks of first neurosurgical consultation. The QPL provides patients with a list of questions which have been useful to previous patients. It aims to assist individuals to actively participate in their clinical consultations through asking proposed questions of healthcare providers. The QPL is thus designed to provide a framework within which patients and carers can organise their information needs and follow pathways to obtain desired information at the preferred level. That is, the QPL prompts patients to ask relevant questions of their health care providers. The QPL will be given to participants immediately following the first data collection interview by the researcher.
Sponsors
Queensland University of Technology
Study design
Allocation
Non-randomised trial
Intervention model
Other
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Diagnosed with a primary brain tumour and attended initial neurosurgical consultation with selected neurosurgeons in the last 2 weeks.
Exclusion criteria
Unable to speak/read English well enough to participate. Not well enough to participate (screened by neurosurgical staff).
Outcome results
None listed