MSBase- An international Registry dedicated to evaluating outcomes data in Multiple Sclerosis

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The MSBase Registry is a longitudinal, strictly observational Multiple Sclerosis database open to all practicing Neurologists worldwide. In collaboration with participating Neurologists, the MSBase Registry has established a unique, web-based platform dedicated to sharing, tracking and evaluating outcomes data in Multiple Sclerosis (MS). In particular, MSBase aims to advance multi-centre, multi-national epidemiological and outcomes research by providing a freely accessible resource to compile, combine, compare and analyse large datasets. Participating Neurologists submit anonymized core clinical information using the freely available iMed software as a standardized data collection instrument. The core data to be collected is termed the minimum dataset, comprising key parameters relating to diagnosis, serial neurological examinations (Kurtzke Functional Score and Expanded Disability Status Score, EDSS), relapse information and treatment exposures. All aspects of patient management are entirely at the discretion of the managing neurologist and his or her patient. Anonymized aggregate data generated from the MSBase Registry will be reported to participating Neurologists on a regular basis. Important findings will be shared with the general neurology community at scientific meetings and through journal publications. The MSBase Scientific Advisory Board (SAB) acts as the custodian of the composite data, while individual datasets at all times remain the property of the participating physician. The MSBase SAB will ensure data integrity and monitor all MSBase activities including core study designs, promotion and implementation, and perform composite data analyses.

Papers published before 2002-11-01 may not appear yet. Historical indexing is in progress.