Modified Flanagan Quality of Life Scale
Sponsors
Freeman-Sheldon Research Group, Inc., Dufresne, Craig, MD, PC
Conditions
ArthrogryposisArthrogryposis Distal Type 1Arthrogryposis Distal Type 1BArthrogryposis Distal Type 2AArthrogryposis Distal Type 2BArthrogryposis Distal Type 3Arthrogryposis, DistalArthrogryposis, Distal, Type 1A
Unknown Phase
Survey Study and Records Review of Treatment Outcomes in Freeman-Sheldon Syndrome
TerminatedNCT01144741
Start: 2010-02-28End: 2022-06-14Updated: 2022-06-21
Study of Quality of Life in Freeman-Sheldon Syndrome and Related Conditions
TerminatedNCT01307475
Start: 2011-02-28End: 2017-04-01Updated: 2017-04-04
Survey Study and Records Review of Treatment Outcomes in Freeman-Sheldon Syndrome
NCT05419245
Start: 2022-06-01End: 2023-12-31Target: 20Updated: 2022-07-19